"If part of what I've learned about living with a disease – an illness – can benefit other people or change the way they look at people with an illness, then it makes what I do worthwhile." ~Steven Arnold 1968-1998
In a previous post, "DISABLED/DISABILITY- The ‘D’ Word is Not a 4 Letter Word!", I discussed the importance of acknowledging and understanding a person's disability. When we refer to disability as 'handicapable', 'differently-abled'. 'disAbility', etc., we are essentially diminishing a person's disabilities and only focussing on their abilities. While this sounds like a positive thing for… Continue reading Downplaying Disability Can Cause Accessibility Oversight
So, it's been a while since I've posted. I've had difficulty obtaining the motivation to write. Do you ever feel that way? You know, the feeling that it doesn't mean anything anymore. The overwhelming lack of purpose. The loss of interest in all activities because you can no longer participate in the activities you previously… Continue reading It’s Been A While
So we know that Zebras are rare, but what happens to those Zebras who are so rare that the other Zebras don't even know who they are? I've been having a lot of medical setbacks lately, and have been struggling to get answers. We all know that the doctors aren't always the best at understanding… Continue reading The Herdless Zebra: When You’re Too Rare to Fit In with the Zebras
The thing about living with chronic illnesses is they are never static. Every day symptoms wax and wane. Some days are better than others, but the symptoms are always present. However, sometimes changes happen when you just know that it is a stage of evolution in your illness that will change how you manage each… Continue reading When Medical Setbacks Change the Face of Your Chronic Illness
The secondary symptoms of chronic illness- Isolation, Loneliness, Lost Relationships, Depression.
