"If part of what I've learned about living with a disease – an illness – can benefit other people or change the way they look at people with an illness, then it makes what I do worthwhile." ~Steven Arnold 1968-1998
I recently read an article titled "Airporky: Lazy passengers are FAKING disability to get a wheelchair at airports and speed through security queues" written by Carolyn McGuire published in The Sun, a UK magazine. This article makes reference to individuals using wheelchairs at airlines in order to skip the long boarding process and other inconveniences… Continue reading Stop The Stigma: People with Invisible Illnesses Are NOT Fakers
If you could give your younger self any advice, what would it be? A letter to my younger self about what to expect growing up with a rare, undiagnosed, chronic illness, and what to do differently to improve my life.
So we know that Zebras are rare, but what happens to those Zebras who are so rare that the other Zebras don't even know who they are? I've been having a lot of medical setbacks lately, and have been struggling to get answers. We all know that the doctors aren't always the best at understanding… Continue reading The Herdless Zebra: When You’re Too Rare to Fit In with the Zebras
Not all disabilities are visible. Thousands of people live their lives with invisible illnesses that can be debilitating, and they deserve validation.
